One of the primary goals of the AFE Foundation is to promote and advance research of amniotic fluid embolism (AFE).
In 2012, the AFE Foundation joined into a formal collaboration with Baylor College of Medicine in Houston, Texas to create the first global AFE Patient Registry.
The AFE Patient Registry is a place where medical information, family history, and other related medical and non-medical information from patients are collected and stored for medical research. The Registry will allow for deeper understanding into individual cases of AFE and the ability to gather vital information that will hopefully lead to the development of better treatments and a means for prevention. The Registry will also allow researchers the ability to track the reproductive and long-term health of survivors of AFE. Additionally, it will provide a comprehensive database that will be used as the basis for clinical research on AFE.
Each case of AFE holds vital information that can help solve the mystery of this devastating birth complication. If you or someone you know has been affected by AFE, please participate.