Amniotic Fluid Embolism Research

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One of the primary goals of the AFE Foundation is to spur clinical research on amniotic fluid embolism (AFE). The AFE Foundation has joined into a formal collaboration with Baylor College of Medicine in Houston, Texas to create the first of it’s kind, AFE Patient Registry. This registry will allow for greater visibility into incidence rates, survival rates and commonalities amongst those affected. Additionally, it will provide a comprehensive database that will be used as the basis for clinical research on AFE.

Since AFE is a rare occurrence, each case of AFE holds important and valuable  information. If you or someone you know has suffered an AFE, please consider participating. The registry is an IRB approved study and open to all patients from the US and abroad. Compensation will not be provided. If you are a healthcare professional who was involved in a case, please contact as soon as possible at 307-363-2337. 

3 EASY Steps to Register:

1.  Complete the online form here.

2. Return the completed two forms provided in step 1.

3. Phone or Skype interview with the research coordinator to complete the consent form.

For more questions or more information about the registry, please contact our research coordinator by email at registry@afesupport.org.

Read more about our registry:

Baylor College of Medicine Press Release

AFE Foundation Patient Registry featured on Front Page of Houston Chronicle.

AFE Foundation Patient Registry lauded as “the most promising research in AFE”  in Journal of Obstetrics & Gynecology